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| Total Entries:
48 |
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Margaret
Sharp |
Wednesday, 7/31/02, 10:52
AM |
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|
I really appreciate this
information. Only love makes this kind of healing possible. Thank
you. Maggie |
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|
From: |
San Francisco CA |
|
E-mail: |
skwirl@leland.stanford.edu |
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Pam |
Sunday, 7/28/02, 2:08
PM |
| |
|
Thank you sooo much for your
story. My brother in law was in a motor cycle accident 2 weeks
ago.The doctor's give little hope of a recovery but I know God is
still in the miracle business, He has severe brain damage, but he is
moving one leg and arm. His eyes opened two days ago to a blank
stare. Please let me know if this sounds like the healing progress.
He is a special man, three years ago his 20 year old son was injured
at work and is now paralized from the neck down. This man has never
given up on his son and now it is his time to get all the love and
support we can give. It is heart breaking for all who love him, we
would love to hear from you and learn from your expernice with your
mom. God Bless you and your family. |
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|
From: |
Virginia |
|
E-mail: |
davisva@netscope.net |
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Francie |
Friday, 7/26/02, 11:00
PM |
| |
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From: |
CA |
|
E-mail: |
faw58@hotmail.com |
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|
Paul
Nicholson |
Tuesday, 7/23/02, 6:56
AM |
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|
Thankyou for the helpful
Information. |
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|
From: |
Williams Bay Wisconsin |
|
E-mail: |
delange@genevaonline.com |
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|
dorothy
anderson |
Monday, 7/22/02, 6:53
PM |
| |
|
My first son was hit by a car,
walking across the street and was hit. He keeps my nerves upset but
I hang in there. He had head trama and other things but i hang in
there with him. |
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|
From: |
emeryville, ca |
|
E-mail: |
queendorothy@earthlink.net |
| |
 |
|
dorothy
anderson |
Monday, 7/22/02, 6:50
PM |
| |
|
My first son was hit by a car,
walking across the street and was hit. He keeps my nerves upset but
I hang in there. |
| |
|
From: |
emeryville, ca |
|
E-mail: |
queendorothy@earthlink.net |
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|
dorothy
anderson |
Monday, 7/22/02, 6:47
PM |
| |
|
From: |
emeryville, ca |
|
E-mail: |
queendorothy@earthlink.net |
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|
Kathy |
Tuesday, 7/16/02, 10:23
PM |
| |
|
Thank you. It has encouraged
me to know that other people have walked the road that we are now
undertaking. Our 21 year old son had a car accident on May 25, 2002.
He is in a deep coma. We are responding the best we can, but mostly
we are loving him and encouraging him while he sleeps. |
| |
|
From: |
Oklahoma |
|
E-mail: |
kbarnett@gcinet.net |
| |
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|
Sheila |
Wednesday, 7/10/02, 10:00
AM |
| |
|
Thank you so much for your
story. My sister is four months into a BI and we are doing much of
what you described. Your story gives us so much hope and
encouragement...something the medical field does not. Please check
out the website I made for my sister to read about her story. Thanks
again. God Bless you and your |
| |
|
From: |
California |
|
Web Site: |
Debi's
Tribute |
|
E-mail: |
shegirl08@aol.com |
| |
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|
sylvie |
Wednesday, 7/10/02, 1:53
AM |
| |
|
hello thank you for an
inspiring visit, i am so glad your mum made progress and all due i
have no doubt to your loving care however i feel that it does not
work for everyone my son was in a coma for two years i did all you
done as my story will confirm, some parts of the brain can be
damaged and cannot be repaired by love, i have brought my son on to
have a small quality of life but no where near the quality your mum
has, i only wish that it would work for everyone but it dosent, warm
hugs Sylvie mother of Lee. |
| |
|
From: |
wales u.k. |
|
Web Site: |
sylvies brain injury support |
|
E-mail: |
sylvietbi@aol.com |
| |
 |
|
Chip Howe |
Tuesday, 7/2/02, 1:00
PM |
| |
|
Keep up the good work and
please feel free to visit our Website also. Chip Howe, President
Brain Injury Association of Texas |
| |
|
From: |
Brain Injury Association of
Texas |
|
Web Site: |
Brain Injury Association of Texas |
|
E-mail: |
chiphowe@wt.net |
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 |
|
L. McNish |
Monday, 6/24/02, 9:18
PM |
| |
|
Hi, I just wanted to say that
you are to be highly commended on the care of your mother!!! God
Bless You!!! My son was a passenger in a car accident, he wasn't
wearing a seat belt!! He was 14 at the time, now three years later
we find out that he has A MILD TRAUMATIC BRAIN INJURY. He was an "A"
student before his accident. For three years I have been punishing
him for low grades. I was thinking that he wasn't trying that it was
just puberty. Not realizing that he was really having to struggle
just to get the grades he was getting. Finally one night he was
playing checkers with me. I beat him twice in ten minutes!! I asked
him what the problem was, He said mom I just couldn't look ahead to
see that you would be able to jump me. He said that when he thinks
he feels foggy. That would mean that he feels foggy all the time.
The next day I took him to the doctor, They did an MRI and an EEG.
The MRI came back clear, but the EEG came back abnormal. He was
referred to Madonna Rehabilitation Center in Lincoln, NE. They have
diagnosed him with MTBI. We will be going to speech therapy and
physical therapy, occupational therapy and also he will be tested at
his high school to see if he needs special education. He will be
treated for anxiety and depression. He will also be going for
Myofacial release from another physical therapist. He also suffers
from Post Traumatic Vision Disorder. They may be able to correct
this with glasses. 65% of his doctor's patients will be able to get
rid of their glasses within 6 months. I can't believe I didn't see
anything. I guess that's what they all say. We don't want there to
be anything wrong with our children. Thanks for letting me get this
off my chest. I wanted to also let others out there know that there
are different forms of a TRAUMATIC BRAIN INJURY. If you notice
changes after any kind of head injury talk to your doctor. I won't
do you any harm to check things out!!! Thanks Again L.
McNish |
| |
|
From: |
Nebraska |
|
E-mail: |
lmcnish@hamilton.net |
| |
 |
|
Armando
Florindez |
Sunday, 6/23/02, 3:06
PM |
| |
|
I am looking for any good
herbal medicine to activated the brain cells, for my wife Lorraine
she had brain tumor, but I,am fustrated because the recovery is very
long. the oprartion was on 08/2001 and was left with the left side
very weak she is in a wheel chair and still can not walk, need sone
sugestions Thanks very much and God bless Armando |
| |
|
From: |
Orlando, FL |
|
E-mail: |
lorrflor@bellsouth,net |
| |
 |
|
yaritza |
Wednesday, 6/19/02, 8:56
PM |
| |
|
very informative. God bless
you and your family |
| |
|
From: |
miami |
|
E-mail: |
PhatandSexie@aol.com |
| |
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|
Sandra Poast |
Monday, 6/17/02, 7:41
PM |
| |
|
That was great, it was like
reliving all i tried for my son, and he too has made great strides.
Boy, do I wish I'd known all that 7 months ago, but it wasn't
something I knew anything about then. We sure learn fast about BI
after it happens to a loved one. Also, I enjoy reading your
responses on e mails - you are very wise. God Bless |
| |
|
From: |
Galion, Ohio |
|
E-mail: |
spoast@columbus.rr.com |
| |
 |
|
Dana |
Thursday, 6/13/02, 8:03
AM |
| |
|
Hello everyone, After 19 years
of dealing with this problem, I was supprized to find out that I am
not alone. My son suffered a closed head injury at age 2 from a car
accident. This was in 84. When this occurred and I finally relized
my son was hurt very badly ( there was not a mark on his body from
this). I had a hard time coping with it, as I was young at the time.
My mom had to take over the care of my son. In the beginging she
made all the decions. God bless my MOm. ( I took him back at age 5)
The doc's at the hospital didnt not give us any hope of his
recovery. They never expected him to make it though the night. After
many months of being in ICU they dismissed him, Telling us that he
would be a vegatable, he would never walk, talk or do anything
again. We took him to The wonderful Shiners hospital for disable
children, where they got him up and making a effort to walk. The
best advice they gave us was not to treat him any differently than
any other child. Make him do things for his self. well after 19
years of this I would like to tell you that he does walk, a lil
unstable. He does talk, with a slurr, you really have to listen to
him to understnd sometimes. He is independant, he dresses himself,
goes to the bathroom by himself, he does alot or himself. But he
still needs assistance with many things. He can not be left alone at
all. He is 21 now, and has a brother that is 15 and a step-dad that
is trying very hard to understand. This is where I need help. His
anger is becomeing more than we can handle. And I dont know what to
do, I have cryed many many tears over this: If he gets set off he is
raging, tearing things up, hitting us, cusing at us, its is
horrible. We do get in his way when this happens, trying to keep him
from hurtng himself ver badly by falling and hitting his head. he
continues untill he is soaking wet with sweat and completly drained
of energy.(which can tke a hour or longer)I have tried many things o
calm him down, talking to him, joking, sending him to his room to
listen to music ( he like this alot when he is not mad as hell)The
last epasode was day before yesterday. I am drained, I have no idea
what to do.( i did take him to doc. and he increased his meds. And
for the first time i am considering placing him in a home, if the
increased meds dont help. His teachers seem to think this might be
good for him, saying he needs his indendence. He knows he is grown
and is tired of being under moms thumb. Well I have a problem with
this, I figure it is my job to take carE of him. GOD GAVE HIM TO ME,
TO TAKE CARE OF. I have never seeked help from anyone, untill now.(
he does have a case worker though MHMR. but I dont use alot of thier
services. I have Never told anyone of the problems we go though, My
mom didnt even have any idea untill a few months ago of his anger
spells we have been dealing with though the years. I didnt want any
pity,or thier sympathy. Every one else sees the sweet side of Ricky,
He is well loved at school by teachers and students ( this is a
blessing)Everyonethat meets him loves him to death, I didnt want
them to know that there is another side to him. Ok now that I have
spilled my gutts, Is thier any one who can offer some insite, to
help me and my family understand this anger better? |
| |
|
From: |
Texas |
|
E-mail: |
lidlbitlost |
| |
 |
|
Dana |
Thursday, 6/13/02, 7:56
AM |
| |
|
Hello everyone, After 19 years
of dealing with this problem, I was supprized to find out that I am
not alone. My son suffered a closed head injury at age 2 from a car
accident. This was in 84. When this occurred and I finally relized
my son was hurt very badly ( there was not a mark on his body from
this). I had a hard time coping wih it, as I was young at the time.
My mom had to take over the care of my son. In the beginging she
made all the decions. God bless my MOm. ( I took him back at age 5)
The doc's at th hospital didnt not give us any hope of his recovery.
They never expected him to make it though the night. After many
months of being in ICU they dismissed him, Telling us that he would
be a vegatable, he would never walk, talk or do anything again. We
took him to The wonderful Shiners hospital for disable children,
where they got him up and making a effort to walk. The best advice
they gave us was not to treat him any differently than any other
child. Make him do things for his self. well after 19 years of this
I would like to tll you that he does walk, a lil unstable. He does
talk, with a slurr, you really have to listen to him to understnd
sometimes. He is independant, he dresses himself, goes to the
bathroom by himself, he does alot or himself. But he still needs
assistance with many things. He can not be left alone at all. He is
21 now, and has a brother that is 15. This is where I need help. His
anger is becomeing more than we can handle. And I dont know what to
do, I have cryed many many tears over this: If he gets set off he is
raging, tearing things up, hitting us, cusing at us, its is
horrible. We do get in his way when this happens, trying to keep him
from hurtng himself ver badly by falling and hitting his head. he
continues untill he is soaking wet with sweat and completly drained
of energy.I have tried many things o calm him down, talking to him,
joking, sending him to his room to listen to music ( he like this
alot when he is not mad as hell)The last epasode was day before
yesterday. I am drained, I have no idea what to do.( i did tke him
to doc. and he increased his meds. And for the first time i am
considering placing him in a home. His teachers seem to think this
might be good for him, saying he needs his indendence. He knows he
is grown and is tired of being under moms thumb. Well I have a
problem with this, I figure it is my job to take carE of him. GOD
GAVE HIM TO ME, TO TAKE CARE OF. I have never seeked help from
anyone, untill now.( he does have a case worker though MHMR. but I
dont use alot of thier services. I have Never told anyone of the
problems we go though, My mom didnt even have any idea untill a few
months ago of his anger spells we have been dealing with though the
years. I didnt want any pity,or thier sympathy. Every one else sees
the sweet side of Ricky, He is well loved at school by teachers and
students ( this is a blessing)Everyonethat meets him loves him to
death, I didnt want them to know that there is another side to him.
Ok now that I have spilled my gutts, Is thier any one who can offer
some insite, to help me and my family understand this anger
better? |
| |
|
From: |
Texas |
|
E-mail: |
lidlbitlost |
| |
 |
|
Laura P. |
Saturday, 6/8/02, 8:01
PM |
| |
|
My husband was in a car
accident Jan.,1997. He has all the "fun" characteristics a tbi has.
I love him very much, but his anger is sometimes too much to handle.
I know that 9 out of 10 marriages end in divorce and I see why. If I
didn't have God in my life I know I couldn't make it. I am so glad
to find a website for caregivers. When people look at my husband,
they don't see the head injury right away. But it's the daily stuff
I have a hard time with. We have 3 children and my hubby has a hard
time. I feel like a single parent most the time. If there is anyone
in the same predicament, please write back. I feel alone, nobody
understands. Thank you. |
| |
|
From: |
Yuba City, CA |
|
E-mail: |
migraineangel@yahoo.com |
| |
 |
|
Laura |
Tuesday, 5/28/02, 1:13
PM |
| |
|
My three children were in an
accident 12/20/99. Scott was critically injured and I recieved the
negative information from doctors which was proved all wrong also. I
did all the stuff you did naturally myself, and I agree %100 that
the injured person needs family, support and love. Your web page is
beautiful, I think we should have it printed and hand it to family
members in the NICU, as I didn't find it untill now, 2 and 1/2 years
after the accident. My three children are all fine, and Scott is
doing things they said he would never do. YOu are a great
daughter. |
| |
|
From: |
florida |
|
E-mail: |
boiledbat@hotmail.com |
| |
 |
|
Craig Dunn |
Monday, 5/6/02, 6:28
PM |
| |
|
I read your site and it sounds
very similiar to mine. Positive reinforcement, family love and
support, I was young (23), in good physical shape, intelligent
(University graduate) and had everything going for me to heal. I'm
glad your mother did well and I hope to keep in contact with you. I
have an author coming to see me from 200 miles away to hear my tale.
I may ask you for some advice! Cheers. Craig Dunn |
| |
|
From: |
Newfoundland, Canada |
|
E-mail: |
craig_dunn@roadrunner.nf.net |
| |
 |
|
Deb Van Dam |
Sunday, 5/5/02, 4:53
PM |
| |
|
I need help please. After 3
TBI to midbrain, I struggle with loss of organizational skills, task
completion, unrelenting anxiety trying to appear normal under the
scrutiny of two completely discompassionate roomates who criticize
my every attempt. Are there resources for caregivers, help to find a
safer environment, help organizing my things to make the day go more
smoothly. |
| |
|
From: |
Arroyo Grande CA |
|
E-mail: |
debvandam@yahoo.com |
| |
 |
|
alice |
Saturday, 5/4/02, 8:37
PM |
| |
|
Very good. |
| |
|
From: |
Ky |
|
E-mail: |
nanny1alice@aol.com |
| |
 |
|
BJ OBrien |
Sunday, 4/28/02, 8:31
AM |
| |
|
Our 14 year old son was hit by
a car in October 2001. It has been six months and he is at a Rancho
level 3 or 4. We would appreciate talking with other families in our
area, especially those who are familiar with the pediatric medical,
rehab, and nursing home facilities. |
| |
|
From: |
Delray Beach, FL |
|
E-mail: |
murphie48@yahoo.com |
| |
 |
|
Clifteen J.
Campbell |
Friday, 4/19/02, 9:06
AM |
| |
|
Thank you for your web site. I
had an enjoyable visit, and was encouraged with your testamony as a
caregiver to your mother. She is blessed to have you as a daughter,
and I'm sure you are blessed to have her as a mother. I am a
caregiver to my 22 yo daughter that has a TBI as a result of a
pedrestrian- auto accident two years ago May 5th. So even though the
situtations are different, there are some similarities in our
stories. Again I would like to thank you for your web page, and for
your courage. It has been a blessing for me to visit your site.
Sincerely, Clifteen (Ce Ce) Campbell |
| |
|
From: |
Fort Walton Beach, Florida |
|
E-mail: |
icbellrun@yahoo.com |
| |
 |
|
Joy |
Wednesday, 4/17/02, 11:56
AM |
| |
|
My husband was in a fairly
small accident. He dumped a Honda scooter in our yard. We thought it
was something he would heal and get back to a normal life. This was
in Oct 2001. He has a severe brian injury. Depression and seisures
rule his life now. I'm glad I found a place where I can here other
peoples triumphs, It gives me courage to hang in there. Maybe things
will get better. |
| |
|
From: |
Maine |
|
E-mail: |
doedoe04224@yahoo.com |
| |
 |
|
Deb
Giacalone |
Wednesday, 4/3/02, 12:29
PM |
| |
|
Thank you for your
inspiration. My mom was in a car accident on Jan. 10, 2002. She
lives in Maryland and thats where the accident happened. She has tbi
and is still in a coma / vegetative state. She has been opening her
eyes for about 6 weeks now. As of right now she is not able to
follow commands. She was stable so insurance wouldn't pay for the
hospital any longer & my father had to find a nursing home that
would take a coma patient with a trach and feeding tube. My dad is
paying for the nursing home because insurance wont and they paid for
the first 28 days of therapy but now they are no longer paying for
that either. He is doing everything possible to stimulate mom while
he is there. He is still working and there for goes over to the
nursing home on lunch and after work. I live in florida but I have
been up there twice and am going again next week to help any way I
can. I know that prayers are very important along with positive
attitude. Thank you again for your inspirational web
site. |
| |
|
From: |
Ft Myers, FL |
|
E-mail: |
eyesdeb2@aol.com |
| |
 |
|
Rachel
Leffel |
Tuesday, 4/2/02, 1:21
PM |
| |
|
I am a Traumatic Brain Injury
Survivor. I was invloved in the car accident in which I suffered my
TBI 12/25/99, a month after your mom's brain injury. I think your
web site is great! I don't know where I would be without my mom,
dad, sister, brother, and fiance(who stayed by my side through
eveything). Again, your website is great! |
| |
|
From: |
Tampa, FL |
|
E-mail: |
rnoya@tampabay.rr.com |
| |
 |
|
Lisa |
Monday, 4/1/02, 8:27
AM |
| |
|
I loved reading about your
experiance It was great to read the real stories. |
| |
|
From: |
New York |
|
E-mail: |
lbesten@sullivan.suny.edu |
| |
 |
|
LAURIE
STELTS |
Saturday, 3/30/02, 10:19
AM |
| |
|
From: |
OHIO |
|
E-mail: |
STELA@BRIGHT.NET |
| |
 |
|
seth |
Saturday, 3/23/02, 10:11
PM |
| |
|
From: |
iowa |
|
E-mail: |
sethden@muscanet.com |
| |
 |
|
Vicki
Quartana |
Thursday, 3/21/02, 11:06
AM |
| |
|
My sister was found on
February 2nd, 2002, gurgling and the family thought she was dead.
911 was called and she was rushed to North Arundel Hospital In Glen
Burnie Maryland. We have been told that she got sick in her sleep
and choked on her vomit. Causing her brain to go without oxygen. The
first few days they said they were waiting her her to come out of a
coma. They did an EEG and said she had moderate activity, on the
forth day they did another EEG and said it was slightly improved
from the first one, on the 6th day they did a third EEG and said
they saw no improvement from the second. At that point they started
giving us options, pulling the feeding tube, turning off the
ventilator or stop treating her for any infection. This is the worst
our family lives all around the country and we can't really come and
go as we would like, to be with her. They never did an MRI on her to
see just what part of the brain was injured and they never even told
us that was a test that would more acuratly tell us what we were
dealing with. They have now transfered her to a nursing home and
told us that infection will be her undoing. WE are hopeless. And
hopeful. She has 4 young children ages 12, 11, 9 & 4. Say a
prayer for us, Thanks for listening, Vicki Quartana |
| |
|
From: |
Ellisville Mississippi |
|
E-mail: |
Ricvicbrod@aol.com |
| |
 |
|
Frank Emery |
Tuesday, 3/5/02, 9:15
PM |
| |
|
A son of a long time friend
had a skiing accident and has been in a coma a little over a month.
He has now been moved from the Reno hospital to the Trauma Center at
Santa Clara Valley Medical Center. Since the boy (really a 26 year
old man) is still in a coma, it is clear that the recovery time will
not be short. The parents are easily over stressed so I am seeking
information that help guide them (and our circle of friends) through
the recovery experience. Thank you for your web site. Frank
Emery |
| |
|
From: |
Los Altos, CA |
|
E-mail: |
feemery@earthlink.net |
| |
 |
|
Sandy |
Tuesday, 3/5/02, 12:10
PM |
| |
|
Hi: My sister's daughter who
is 35 suffered a brain aneurysm and has to have around the clock
care due to short term memory loss and not able to communicate. My
sister who is single has used up her savings in order to stay with
her daughter. Does anyone know of any type of financial support
program that may be available to pay her some type of income for
being the caregiver? She has to have an income but does not want to
put her daughter in a nursing home. Thanks. |
| |
|
From: |
Sanford, NC |
|
E-mail: |
willomena60@hotmail.com |
| |
 |
|
Mary |
Tuesday, 3/5/02, 10:44
AM |
| |
|
My husband's injury was from
surgery for a benign tumor, but he has the same problems as a person
that has tbi caused by an accident. Your website has given me the
push I needed to keep going. I am his only caregiver, with all of
our families many miles away. Thank you for your help, and God bless
you and all others dealing with this problem. |
| |
|
From: |
Nebraska |
|
E-mail: |
garmar@nque.com |
| |
 |
|
Mary |
Tuesday, 3/5/02, 10:38
AM |
| |
 |
|
Mirta |
Thursday, 2/28/02, 5:06
PM |
| |
|
From: |
IL |
|
E-mail: |
mpfowler02@attbi.com |
| |
 |
|
Lila Cook |
Sunday, 2/24/02, 4:59
PM |
| |
|
I suffer not only TBI, but the
judgemental and often ridiculing attitudes of others. I reaaly hope
that some of those people who find it so amusing to make fun of
adisabled person, may one day find themselves or a loved one in a
simialar situation. Lila |
| |
|
From: |
Albuq. |
|
E-mail: |
lila777witch@yahoo.com |
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Zulma I.
Rodriguez |
Sunday, 2/24/02, 10:23
AM |
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Cindy
Held-Szlasa |
Monday, 2/11/02, 6:58
PM |
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Betsys advice is invaluable. I
have been trying very hard for the last three months to do exactly
what I just read. My husband is doing well, very motivated and
happy. He was in a truck accident October 30, 2001. His doctors and
therapist are genuinely concerned about his successful recovery.
Some days are harder than others but we continue to dig deep for
strength and rely on family and friends for good thoughts and
prayers. Happy Valentines Day to all of you incredible TBI survivors
and caregivers!! |
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From: |
Ocean View, DE |
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E-mail: |
steveandcindy@compuserve.com |
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Tracy
Walters |
Sunday, 2/10/02, 6:04
PM |
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I am looking for information
TBI due to my 30 year old son having an auto accident and is now in
coma for going on three months. I am trying to do what i can to try
and bring him back to us. |
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From: |
Dover, DE |
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E-mail: |
tracy_w24@yahoo.com |
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Marylin
Copeland |
Sunday, 2/10/02, 1:08
PM |
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For those survivors and
caregivers in the South Hampton Roads area of Virginia who may be
looking for support & resouces, the Tidewater chapter of the
Brain Injury Association of Virgin1a meets on the second Monday of
each month in Virginia Beach at 6:00 P.M. For location and
directions, call me at Commonwealth Support Systems at (757)
493-8000 or at (757)588-6205 or e-mail me at
granbyhome@aol.com. |
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From: |
Brain Injury Association of
Virginia |
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E-mail: |
granbyhome@aol.com |
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LYNDA |
Thursday, 2/7/02, 2:20
AM |
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HI THANK SO MUCH FOR GIVING ME
HOPE ..WHEN MY FAMILY HAVE GIVEN UP ON SAM... I WILL REMAIN HOPEFUL
THANKS AGAIN LYNDA |
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From: |
SCOTLAND |
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E-mail: |
HLYNDA28@AOL.COM |
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Crystal |
Tuesday, 2/5/02, 1:36
PM |
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A really close friend of mine
was in a coma for a week in the summer of '00. He is out of it now,
but has not really shown a whole lot of improvement. I was just
wondering how long it took for your mom to recover? I visit him
about once a week is there anything I can do to help him, even if
it's one day out of the whole week? Thanks for your wonderful story.
Hope to hear from you soon, Crystal |
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From: |
Illinois |
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E-mail: |
ccd82@yahoo.com |
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Jennifer
Geoghegan |
Sunday, 1/27/02, 12:56
PM |
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I just wanted to say thank you
for this web page. I read it and found I have already been doing
alot of things with my hsuband like that. We were in a bad car
accident in September. My husband has a traumatic brain injury he
had a open head wound. He came out of his 7 week coma with speech
and writing and long term memory and some short term memory still
intact. It is hard and I can't wait to get him home. How long did it
take to finally get your mother home? |
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From: |
Wisconsin |
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E-mail: |
lileanme@yahoo.com |
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patti &
al |
Tuesday, 1/22/02, 11:18
PM |
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happy new year |
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From: |
ft lauderdale |
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E-mail: |
pathwl@webtv.net |
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patti &
al |
Tuesday, 1/22/02, 11:18
PM |
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happy new year |
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From: |
ft lauderdale |
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E-mail: |
pathwl@webtv.net |
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Tina Jones |
Thursday, 1/17/02, 9:10
AM |
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You have inspired me. I had a
wreck in August of this year. I was hit by a gas 18 wheeler. I was
in a coma for 29 days. I suffered brain injury as a result. I agree
with you about family support. I have had alot. I could not do it if
wasn't for my family & my determination. I have two boys, I was
trying to get home to them and my husband. |
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From: |
Oneonta, Alabama |
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Web Site: |
tinytina |
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E-mail: |
ctjones@otelco.net |
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Kim |
Wednesday, 1/16/02, 6:01
PM |
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Hello again, Betsy. It has
been over six months since I originally wrote in to thank you for
your web site (see "Kim - 6/25/01"). At that time, my 76- year-old
dad had just suffered a brain injury due to a 4-wheeler accident and
being on a blood thinner. He had a cerebral hemmorrhage involving
the left frontal lobe, 4 broken ribs, and was unable to move his
right hand nor his legs, nor could he speak or swallow. I found and
printed your Mom's story on your web site that night and showed it
to my mom and sister the next day at the hospital. We followed your
suggestions consistently day by day and kept things positive in
spite of fear that was often overwhelming. Your words encouraged me
greatly, and I found myself reading them over and over whenever I
got discouraged or feared he might never recover. Two days after I
wrote in, the ICU doctor at the hospital where he was at told us
that Dad would have to have a tracheotomy and a feeding tube in his
stomach the next day. They said they were disturbed by his sleeping
and breathing patterns, and that he could not be woken up. It was
very scarry that day. We held Dad's hand as he slept, told him how
much we loved him and that he was going to be fine. My mom made the
decision to have him flown that same day by helicopter to a
well-known hospital in the Chicago area. Once there, the doctors who
saw him felt that he did not need a trach nor a feeding tube, and
the speech therapist there felt he could swallow enough to eat on
his own. He ate solid food by mouth the next day and steadily
improved little by little. Over the next few months, every tiny
improvement was a milestone that we celebrated with him--when he
moved his right thumb for the first time, his right toe, when he
spoke his first words. We continued to pray and to keep things
positive, even if we got a negative report from a doctor or from a
physical therapist. There were many ups and downs during his
recovery. One of us was at the hospital with Dad every day of the
week every week, and we did not show him our fears. Dad started
physical therapy in July at a sub- acute center. We helped with his
therapy and arm massage, but only after getting the ok to do so by
his physical therapist, just as your web site suggests. (I since
learned that the reason that it's important to check with a
doctor/therapist first is because doing massage to a swollen arm/leg
can cause a clot.) By August, Dad was at a very aggressive
rehabilitation center, and by the end of the month he was able to
take some steps while assisted. My dad had an incredible will to get
well again and to be self sufficient. He never complained, he just
worked harder. By Christmas 2001 he was able to walk around the
house with only a walker, and he recently started working on his
taxes. Dad's plans are to take a trip out west this summer with Mom.
I write this with tears welling up in my eyes a bit, because as I
write, I remember my fears and my emotions last summer when things
looked so grim. I am very thankful to God that He has healed my dad,
and very thankful there was someone like you out there who has given
her time to help others like you have with this site. I have left
copies of your story in the ICU waiting rooms at both hospitals, and
I have shared your web site many times. Your story and your ideas
have meant a lot to our family as we put them into practice in our
own situation and as my dad recovered over the last six
months. |
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From: |
Union Mills, IN |
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E-mail: |
kimberly.land@quantitude.com |
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